So im back from Gozo, a beautiful island off Malta and I am hoping to move there next year with my children. It was so peaceful and calm, no 'rat race', didn't feel like life had its hands around my neck giving me a Homer Simpson shake. I met the most wonderful people, such a lovely relaxed culture who take their health very carefully.

I was staying with my mum's cousin Beverley who lives out there permanently with her family, she has a Bio-Medical intervention clinic and provides positive life training. I find her absolutely amazing if I am completely honest. She has my life lol.... the life iv envisioned since a young age. My appointment diary was filled to the degree that I was having to turn clients away! Ther Wrap and Relax Appointments went very well with people asking when I can go back. I would have liked to have gone back once a month however next month I am visiting Amsterdam to see my friend Yasmin who also has Behcets, EDS and Fibro like myself. We can have wheelchair races on the ice lol! Although that would go disastrous, Gozo seemed to be the first time in years where I haven't had an embarrassing moment, although at the retreat there was a lovely lady who was a Lesbian and everyone thought I was too as she kept stroking and hugging me for well over 5 mins, singing to me, so me being me keeps hugging her back, despite finding these crazily long hugs very strange, I just thought it was a Gozitan thing like kissing on both cheeks when you greet! It only came out when I declared one young gent to be absolutely delicious to look at! It was actually quite funny and highlighted just how innocent I can actually be.

I should have started a blog literally years ago as there is always something going crazy in my life, one thing after the other! Its like one of those comedies you read, or the little cartoons you see. So hold on tight because i'll be very surprised if you lovely readers are not holding your sides with laughter and i hurdle my way through life and every experience you could fathom.

Background Infill
June 2012 we went on a lovely family holiday to Wales, Cardigan bay, I loved the place very rustic rural with lovely places to visit. I unfortunately had to be the one bitten by a tic, no one else, me as per usual. I was at my fittest at this point having been doing the squat and abdomen challenge and attending Muay Thai Boxing classing as well as Yoga and Pole Exercise. I had buns of steel do to speak.

Four weeks later was my brothers 21st Birthday. So working hard I prepared a whole Spanish Menu that mum and I cooked for over 150 people on our own, Decorations and the venue, literally everything tbh, as mum and dad were slightly reluctant about throwing yet another big party! I started to feel ill that evening, sore throat, headache, heart racing. As usual I applied the war paint, had my curly blow done, squeezed into an amazingly fabulous body con dress and dug out my fabulous sky scrapers aka heels. I teetered about unsteadly but looking fabulous setting it all up arranging tables and tinfoil balloon things, the normal balloons are like balls of death as I have a serious Latex Allergy and the kiddies insist on chasing me around most party venues. It seems to fulfil my secret ninja dreams, still not got the flying down to a T yet!

I had to ask Dave the person I was dating at the time to take me home about 2 hours into the party, My muscles were sore and achy, i didnt have the strength to walk properly, my vision was blared, could hardly took, basically I felt like Shit. Can you swear on these blogs? This is where I write my entire life and have it deleted. Anyway I returned to the party in flats and as you know the show must go on!

The next morning when I woke I could hardly lift my head off the pillow, My heart was still racing, and I had severe chest pain. I was raced to the Hospital where it was confirmed I had Myocarditis. I was in for a day or so then sent home. I was curled up on the sofa with Dave watching a film when my left knee became completely swollen and bright red with excruciating pain! I was in total agony. By the time I had got to the Hospital my Left Ankle was the same and the base of my spine. I waited for several hours before being transferred to infectious diseases. They thought I may have had Rheumatic Fever. Checks where done, doctors enquired about tic bites and if I had been on holiday abroad, I informed them I had been to Wales but not abroad, apparently Wales didn't count, despite having swelling and a black spot where the tic had bit me. After two weeks i was discharged with no answers and every single joint in absolute agony, I was taking oral morphine every hour on the dot as I couldn't cope at all. I had an 8 week wait to see another Dr, my appointment was the day before I was meant to be going Ibiza with the girls. He diagnosed suspected Behcets and referred me to a specialist. I was to take 85mg of Prednisolone steroids every day in the mean time till I saw the Behcets Specialist. This was September.

I went on holiday and I concentrated on making shapes on the dance floor whilst sat on a bar stool.... its not as easy as it sounds but I was determined I was going to join in everything I could. Alcohol was a huge no no due to all the drugs I was now on. I rattled with every step.

About two weeks after Ibiza I felt very Ill, I decided to go to the hospital where the specialist worked I was being referred to to see if he would come and see me in A&E. I was admitted again however for a 6 week period as my Liver was supposedly being attacked by immune system. The Specialist came to see me in A&E before admitting me and declared Behcets. I was able to show him ulcerations in my mucosa areas and erythema nodosum on my thighs, skin lesions, psoriasis, arthritis/arthralgia and much more.

When he came back he couldn't remember who I was and took away the Behcets Diagnosis as I no longer had as many ulcers and the Nodosum had gone. I had been on treatment for three weeks, why prescribe treatment if you don't believe it could possibly work. I had also had IV Steroids. I was now a size 10 from a toned 8, but had a permanently distended stomach and looked Pregnant. A lady with Alzheimer's on the ward asked every time i walked past her bed what i was having and how long i had to go! At first I wanted to die of shame, after the first three or four weeks of it I chose to totally ignore her and asked to move wards. I was after all terrified for my life, the Old lady in the bed next to me on the right by the window, also had Alzheimer's and all she shouted was 'im scared' or 'help me', 'help me', without intervals at all, constantly, like a broken record. I couldn't sleep at all. At one point she even told me not to worry as she would kill me before they could get to me. Suddenly I was all for Euthanasia- no im only joking but I had to move beds!

My Steroids were tapered down and in February the specialist stopped my meds from 300mg Azathioprine (a biological drug) and 5mg Prednisolone instantly, no weaning down in halves like most do with steroids. I ended up back in the royal as I collapsed and had something that mirrored an Addison's crisis. It couldn't be Addison's because I was too Fat. I was now a 10/12 but very swollen from the IV drugs the A&E had given me upon arrival. I tried to explain that I was naturally thin and it was all just steroid weight but they wouldn't accept it. My GP didn't even recognise me once i was Discharged. Whilst in they gave me regular bags of Steroids, then they would immediately stop them to see how my body reacted. I wasn't producing Cortisol or Adrenaline only Prolactin so I really did look pregnant then! I had Insulin Stress Tests done and some other test done on my endocrine system that i cant remember the name of. My memory is atrocious atm due to bad medical care. It went on and on over a four week period. When I left my memory was just awful and has remained so since, whereas I was highly intelligent and had a great career before getting sick.

I was discharged by the specialist as I had gone to another hospital and they had had the audacity to question his decisions as it had nearly killed me. He took me off all meds and left me without a Doctor to oversee my care. I had to go back to my GP who didn't recognised me and accused me of having herpes (the ulcers) and physical symptoms caused by depression. I told him where to stick it as I was very emotional and fed up by this point. It was now march/June. I had to make another appointment and request a referral back to the original Doctor who had seen me. It would be another 8 weeks.

I then went Blind about a week later, Only on pain medication and completely blind, my vision repaired slightly in my left eye. I went to St Paul's Eye Hospital and was put back onto Steroids and Azathioprine, 75mg Pred and 300mg Azathioprine. This was in June 2013. I stayed at that dosage till about August when I began to taper down, I had been back to St Pauls for a review and they realised it was deposits in my optical nerve and nothing they could do for them, the Azathioprine and Prednisolone was useless for it, I had been on a doseage far too high for no reason at all. However with it being Behcets they had to take precautions immediately as it can cause blindness and is a regular symptom of the disease. I was now a size 16/18 and had lost all my self confidence; still not found it yet when I do I will let you know! My skin that had been smooth without a blemish was now covered in deep redish purply stretch marks all up my sides and down the insides of my legs and across the top of my thighs, Its devastating. Iv been using a product from It Works! Global called the Defining Gel and The Stretch Mark Cream and they have recently begun to fade. http://WholisticTransformation.myitworks.com. They started to taper down my Prednisolone. 5mg decrease every week.  

In September I was still completely Wheelchair bound for long Journeys but i Met Beverley at a family funeral. I hadnt seen her since I was a very young child. She didnt recognise me at all however gave me a load of Biomedical advice, started me on several supplements and within three days my colitis had gone. I forgot to mention that, as per, my memory is crap, i had been in and out the gastrology unit also and was diagnosed with ulcerative colitis. They then removed the diagnosis and discharged me as the specialist had written a letter to them explaining his reasons for discharge. Very unprofessional if you ask me! I was able to walk longer on my stick it was amazing with very quick and noticeable results, this was the start of November 2013. She took a sample of my hair and sent it off to be tested. This sample came back with Lymes Disease that was triggering my immune system to go on the attack, so it was nice to find out it was trying to help me and not kill me but causing autoimmune symptoms in the process as well as the Lymes Symptoms. Unfortunately Lyme Bacteria is fed by Steroids so its a big No No. So I do have Behcets and EDS just the Lymes as well.... the joy i'm collecting them quicker that brownie badges when I was younger!

Iv been improving and improving each week thanks to Beverley and her magick skills. I highly recommend her to anyone, she has also reversed autism in some children where it was late onset, many autoimmune conditions and much more including Candida and Cancers, She had Cancer and Diabeties herself and her sister Leigh died from a brain tumour a very rare one, which was the initiative for Bev's interest in Natural Medicine that works with the body not against it. Her son Alex also has Late Onset autism and we all suspect the MRI to be the cause as hi symptoms started a few hours after the injections.However I will save that for another story.


That is how I ended up going Gozo, she could do with having further treatments on her clients that compliments her treatments and advice. I was absolutely Chocka and cannot wait to go back. Iv been really tired since however thats just the chronic fatigue playing up. My Diabeties was quite bad the last day as we were traveling and there was nothing gluten and diary free on the plane. My Diabeties is Type 2 and was caused by the Steroids. Im hoping when I am off the steroids It will go. I am down to 1mg Pred a day now, very exciting stuff, cant wait. Im also taking a supplement called chromium which balances blood sugars and helps your metabolism burn fat into muscle alongside the It Works! Body wraps which do actually work which is suprising, most stuff like that are a fad and are just water loss however these results seem to be long term, its fabulous, im watching other people used them and they too are having fabulous results, theres piccys on www.facebook.com/WholisticTransformation.

As I am writing this my 21 yr old Brother who has ADHD and Dards whatever Dards is has nearly set the kitchen on fire using the Chip Pan. He really should come with a warning! I haven't moved that fast in over a year and a half lmao! Boys will be boys though. Fabulous.  Apparently I am to watch his chips cook whilst he plays on his play station! I seriously do not think so! You would think he was the disabled one!

Anyway it was brill in Gozo, the whole island just has this amazing feeling to it, its a very healing place. Made me feel great, no stress or issues over anything, everyone just rolls with life like I do personally. I will keep you posted on when i'm going back hopefully I will find a relatively cheap home for me and the kiddies.
I am quite nervous about moving the older two 9 and 10 yrs when they have settled here and have friends, especially with the language barrier, however i'm informed they will pick it up easily. Have to find myself a nice Gozitan man to sweep me off my feet especially now I am improving and healing. So exciting! My brother mum and dad are also willing to do the move with me, mum and Mat with me asap and then dad will follow when he retires in 3 yrs however will travel over regularly. However they are all major stress heads that shout instead of talk.... i feel sorry for Gozo ha ha, although the island does have that suppression on your worries and stresses naturally. Its amazing like that!. Battery running out on laptop so must go

Much Love!